My son

The whole way through my pregnancy I was so careful not to harm my baby in any way. I didn't have any alcohol or drugs of any kind. I wouldn't even be in the same room as someone smoking. My Son was born on the 30th of June 2003. It was the happiest day of my life. He weighed a healthy 3110gm. The birth itself was horrible. I was in labour for 21 hours. His head got stuck in the canal and he was removed with the help of a ventouse.
He was bright yellow with Jaundice so he had to stay in hospital for 8 days. He spent 3 days under phototherapy lights.
The Doctors noticed that his eyes wobbled from side to side so they had some specialists come in. "He's got a Nystagnus" they told me. "Nothing to worry about".
Then when he wasn't attaching to the breast they realised he had a high arched palate. "Nothing to worry about" they told me.
Finally I could take him home. I didn't get a moments rest. The baby would feed every 5 minutes and vomit constantly. With no help from my partner what so ever. I was doing it all on my own. The baby slept with me in my bed because I had to feed him so much. He couldn't feed for longer than a few minutes at a time because he was puking it back up. I was extremely sleep deprived. The doctors told me he was just a "vomity baby". He continued the same feeding pattern for 18mths.
Shortly after getting him home he had developed a cold. I took him to numerous Doctors who just said there was nothing we could do because he was so young. The cold got worse and worse and he started getting high fevers. So I took him into emergency when he was 5 weeks old. Turned out he had RSV which is a serious virus that can sometimes lead to death in small infants.
While he was in hospital the doctors were worried about his head size. It was growing a lot faster than his body was and was now way out of proportion. They started running tests including MRI's and ultrasounds. They found that he had cysts on his brain but told me not to worry about them. Then they did a DNA test. The baby was sent home before we got the test results.
When he was 8 weeks old we went back to the hospital to see a neurologist. I was told that my son had a partial chromome deletion. I had no idea what he was talking about. When I asked what it meant I didn't get much of a response. The Doctor said "most likely he will be a normal child and live a normal life but there is a slight chance he will have some learning difficulties". It was left at that.
As he grew I realised he wasn't reaching his milestones like other babies his age. He was also getting sick a lot. I knew that I was going to be raising a disabled child on my own. By then his so called 'dad' had taken off to have biological kids with his ex girlfriend. Actually I was the one who ended it. He was an alcoholic and I didn't want my child to grow up around the same shit I did.
My son then faced many challenges. There are way too many to write on here. I have made a video about him that is on youtube. You can watch that to understand a bit more about his disability. www.youtube.com/chromosome16disorder
I love my son more than anything. I seriously believe that if I didn't have him I would have killed myself a long time ago. Or I'd be on the streets still.